Patient Advocacy Directory

Sarcoma patient support organizations advocate on behalf of the sarcoma community and work to ensure that patients and their families have access to resources and information. If you would like to add your organization to this list please contact us.

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Alan B. Slifka Foundation

Alianza GIST

Angiosarcoma Awareness

Australia and New Zealand Sarcoma Association

Bone Cancer Research Trust

Campaigning for Africa

Children’s Tumor Foundation

Chondrosarcoma Foundation

Chordoma Foundation

Chordoma Foundation – Netherlands

Clear Cell Sarcoma Foundation

Cum Cura

Desmoid Fibromatosis UK Patients & Caregivers

Desmoid Foundation

Desmoid Tumor Research Foundation

Desmóide Brasil

DigiSwasthya Foundation

EHE Rare Cancer Charity (UK)

Érintettek Association

Finnish GIST and Sarcoma Patient Network

Focus on Rhabdo

Fondazione Italiana GIST ETS

Fondazione Paola Gonzato, Rete Sarcoma ETS

Friends of Max

Friends of TJ Sarcoma Foundation

Fundación Mari Paz Jimenez Casado

Genç Birikim Derneği & Youth Accumulation Association

George Pantziarka TP53 Trust

German Sarcoma Foundation

GIST & STS Alliance for Patients

GIST Cancer UK

GIST Support Österreich

GIST Sverige

GISTERS

Greek Patients’ Association

GSI – GIST Support International

Henzo Kenya

HomeCare Association

Info Sarcomes

International Cancer Advocacy Network

International EHE Support Group, UK

Israeli GIST Patients Organization

Kids v Cancer

Lazarex Cancer Foundation

Little Warrior Foundation

Lizzy’s Walk of Faith Foundation

Make IT Better Agents

MC4 in Corsa Per La Vita!

National Coalition for Cancer Survivorship

National Comprehensive Cancer Network

National Leiomyosarcoma Foundation

Northwest Sarcoma Foundation

Osteosarcoma Institute

Patiëntenplatform Sarcomen

PAWS-GIST Clinic

Recovering Together Association

Rein in Sarcoma

Rutledge Cancer Foundation

Sachin Sarcoma Society

Sam Day Foundation

Sarcoma Alliance

Sarcoma Assistance Group Association, ASARGA

Sarcoma Cancer Foundation of Canada

Sarcoma Cancer Ireland

Sarcoma Coalition

Sarcoma Foundation of America

Sarcoma Patient Advocacy Global Network

Sarcoma Strong

Sarcoma UK

Sarkomer

Sarkomföreningen

SMARCB1 e.V.

Sock it to Sarcoma!

SOS Desmoid

SOS Desmoide France

Stowarzyszenie Pomocy Chorym na GIST

Stupid Cancer

Summer’s Way Foundation

Swiss Sarcoma Network

Synovial Sarcoma Research Foundation

The Charlie Landers Foundation

The Cynthia Solomon Holmes Foundation

The EHE Foundation

The Jimmy Fund

The Josh Powell Foundation

The Life Raft Group

The Linda Noack Wiener Sarcoma-Oma Foundation

The Myrovlytis Trust

The Polish Sarcoma and Melanoma Patients Association

The QuadW Foundation

The Rare Cancer Research Foundation

The Roger Wilson Research Award

Together Fighting Sarcoma

V Care

Wendy Walk

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